Xyler had his MRI on May 24th. After a long wait of 4 weeks for insurance to approve it I got a call to schedule it but the soonest they could get him in was for June 13th. This was all because of the type of anesthesia they were going to use on him was only done on Wednesdays at a certain time. I was devastated since I just want to get this surgery past us. Poor Xyler is getting sick of his oxygen tube and keeps pulling it out. I called his cardiologist to see if there was anything they could do. He changed what kind of anesthesia they would use so then we were able to get him in for his MRI the very next day. This was an answer to my prayers!
Xyler did really well with the MRI. He was so cute when they were putting him to sleep. He fought it at first and then he took a big yawn and made the cutest little noise and then went to sleep. His body instantly went limp and he seemed like he would be out for a bit. The nurse took him from Scott's arms and then laid him down on the table for the MRI. Once he was laid down he instantly woke up and started wiggling like crazy! Scott and I both couldn't believe he was awake. He does not like to be laid down on tables since he normally ends up getting poked by needles when he is. I'm thinking he woke up because he was scared he was going to get a shot. :)
A week after his MRI I got the call for the date that his surgery was set for, June 15th. Well, I just got a call today and they have now changed it to June 14th. We take him in on the 13th for his pre-op. It seems so crazy that it is only a little over a week away. There are so many things I need to do to get prepared for it. It is hard to describe all of the emotions that go through me. My sister is being a saint and watching my 3 other kids. It is so hard to be away from my other kids. We are still trying to figure out where we are going to be staying so I'm stressed over this. We have options for places that are about 30 minutes away but I have a very hard time with being that far away from Xyler. It is hard enough that I have to leave him at night but it seems unbearable to be that far away too!
Right now I think I am just trying to think about how hopefully he will be off of oxygen after this surgery and will fatten up and get more strength. It is hard to think about the moment when I will have to give him a hug and a kiss and let them take him away from me and into the O.R. Right now I am just trying to keep that out of my mind but it's not easy. It is so hard to wait while knowing that they are operating on him and his heart. I am so thankful for these miraculous doctors and nurses that can do these things. He is a very strong little boy and I know he is a fighter and will fight through this. He already showed us this with his first surgery.
Hopefully in a little over a month we will be able to go out somewhere as a family. We have not been able to do this since Xyler was born. It will be so nice to take Xyler places and for him to experience more than just home, doctors offices and hospitals. He will either love it or be a little scared. I can't wait to see which one. :)
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