So....I think it's obvious by now that I am not the greatest at updating this blog. My intentions are there, however having time is not. I was planning on doing updates ever day when Xyler was in the hospital but was too tired to do it. I guess I am just getting old. :) I will just have to recap everything right now.
Day One In Hospital - In my last post I briefly talked about how Xyler was after surgery. I still won't go into too much detail. His surgery was set for 8:30 AM and we had to be there by 7:00 AM. We had to wait for quite a while before they finally called us back to get Xyler ready for his surgery. Dr. Kaza(Xyler's surgeon) met with us briefly. He couldn't believe how big Xyler was and he thought he was so cute and loved his dark eyes and long eyelashes. Then the anesthesiologist came in and talked to us. After we got an employee to come in to help Scott administer a priesthood blessing to Xyler before they took him back for his surgery. Saying goodbye before they take him is always so hard. I was doing good up until that point. They just had me carry him to where he needed to go as far as we could go. I gave him a lot of kisses and a big hug and with tears in my eyes I had to hand him over to the anesthesiologist. Scott and I made our way to the waiting room and began our long wait. It is nice that they update you throughout the surgery and I was always watching the clock waiting for an update. After a long wait we were finally able to see Xyler and by this time it was 3:30 PM. This one was longer than his first but they also had to do more this time.
In his first surgery they put in a BT Shunt so that he would get blood flow to his pulmonary arteries. they also had to widen both his left and right pulmonary artery. Both of those looked good so they didn't have to do anything with them during the second surgery. So, this surgery they had to take out the BT Shunt, patch up his hole between the lt and rt chamber(which we have a piece of the material they used and were told that his hole was really big), and put in what they call a conduet, which is from a donor, for his pulmonary valve. Xyler did not have a pulmonary valve before this surgery.
It is always such a relief when the doctor comes and talks to you about the surgery and then when you can see your child. I don't even get scared at seeing him with so many tubes and IV's after surgery because I am just so relieved that he made it!
I was so happy and surprised when they told us they would try to take the breathing tube our that evening. It happened sooner than we thought it would! Yay!
He slept most of the first day after surgery, which who can blame him. It's hard getting the anesthesia out of their little systems and then add pain meds on top of that and you have a nice sleeping concoction. We did see some eyes a few times but only for a few seconds, but he did kick his legs up a lot. That was one reason why they took out the tube sooner than expected.
It is now late and I am once again super tired. I think I should just blame it on my kids and not from being old. :) I will try my hardest to get on here tomorrow, or I guess I should say later today since it's after midnight, and finish telling about this surgery and add more pics.


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