I thought I better get on here and write an update on Xyler. We took him in on the 18th for an echo. It went well. He kept waking up so they had to keep giving him more drugs. He was awake when they were done but still had a dazed look. He did really well with eating after so we didn't have to stay too long in recovery. The nice thing was his cardiologist came and talked to us while he was in recovery.
He told us that he was needing the next surgery now. He also said that he may need to get an MRI since the echo didn't show his left pulmonary artery very well. His surgeon was out of the country so when he came back then he would decide on if the MRI was needed or not.
Well....I got the call today and they do want an MRI. I was hoping to be told a surgery date in a couple of days but now one won't be set until after the MRI. Hopefully they will call soon with a date for it. Then we will go from there.
Waiting is hard for me. I am nervous for Xyler to have his surgery and at the same time I just want it over. I have been talking to another TOF mom and she has told me how well her daughter did after her second surgery. I hope Xyler does as well. Right now he doesn't have the strength to stand on his legs. When I try he just laughs thinking it's fun. He also doesn't sit on his own. He did just start rolling over from his back to his belly. He has been rolling onto his sides for a long time and likes to sleep on his side. One night I checked on him and he was on his belly. He has rolled back a couple of times but all of the other times he gets really mad until you move him back to his back.
I am also looking forward to him not being on oxygen after his next surgery. I am hoping he will come home without it but know it may take a bit. I have had to turn his O2 up to 1/2 a liter. He used to be on 1/4. This is also a sign that he is outgrowing his shunt and needs the surgery.
Today he is six months old. Time has gone by fast. He has added so much joy to our family and we just love him so much!
